My Speech in Butuan
My ID as an Advocate of Autism |
As requested by Teacher Net of Tiny Steps Butuan and Teacher Nino:
Behaviors and Social Communication skills
My life experience as a person with autism is a lifetime
endeavor, behavioral challenges during my lifetime is prevalent. Like being one
sided in communication skills. I do not have behavior issues during my
childhood because I am following what is told to me. I am a perfectionist in
nature, so in my mind I do not want to make mistakes. And when I get mistakes I
get frustrated especially in academics. I fairly do well in academics then
however my interests in singing, dancing and even playing sports was not
discovered then, I really do not welcome criticism warmly as I do today. I was
always following my parents, siblings and teachers. My social communication
skills in my elementary years was being more of a reserved person. I prefer to
be a person who wants to be initiated on conversation. My social engagement
skills in unfamiliar situations are not well developed, because I do not have
the patience to do so. Due to this I was susceptible to aggression and
meltdowns when ignored by friends, depending on the person I will throw a punch
or rage to attempt to/throwing tables and chairs when I perceive intrusion to
space. Intrusion to space means being provoked, teased, taunted. Negative
friends taught me to fight back in elementary. So through these my anger to people
grew more, so I start to hate people who do negative things to me. Because of
lack of acceptance way back then by my peers they always call me ‘abnormal’
‘buang’ and ‘pikon’ when I react violently to jokes. How would I not react
violently when they are the ones who provoke me through punching me everywhere.
Well I had a great endurance because of this experience, my pain threshold is
very good that I can tolerate pain for long periods of time. That helped me to
the sport I play basketball, despite the fact I want to enroll in mixed marital
arts classes. Boxing profession was not up for me because of the concussion and
Parkinson Disease that Muhammad Ali and Freddie Roach suffered to repeated
blows to the head.
Interests
I do try a lot of sports, swimming, boxing, taekwondo and
basketball. I do play dodgeball as well. But what was sustained is basketball. When
I was 11 years old I was very passionate about basketball, it become a sport
for me for a life time. Basketball is part of me bridging the gap between
persons with autism and me. My social skills in dealing with my teammates in
game was not easy because I was getting picked on by people due to my special
needs and aggressions. My playmates were scared of me and do not want to play
with me in the court. Coaches in my high school and different colleges and
university were rejecting me and picked me on try-outs. Being persistent on my
hobby I practiced but improvements on my individual talents were really not
enough to be with a commercial or professional team which is my dream. I
fantasized on being an NBA player who was cheered as he shoots or dunks and
break record of NBA greats. My basketball idols were Hakeem Olajuwon, Karl
Malone, Shaquille O’Neal, Kobe Bryant, Michael Jordan and Tim Duncan. I feel I
do play like them when I play not knowingly later on I opted in to be myself as
I play and be happy even I do not have the hops of Michael Jordan who can dunk
and has a 50 inch vertical where I do have only 36 hahaha at least I can Tap
board but now my knees cannot carry my weight hahahaha. There were tandems that I want to form
before in my basketball hobby, which I get frustrated. I was obsessed with the
sport and the people who I wanted to attach myself during my puberty years that
I have to overcome. As years go by people around the community in Davao learned
to adjust on cases like this. By the grace of God this happened amazingly and
unexpectedly through the support of loved ones and friends through basketball.
It brought love from them doing self-advocacy in it through this successful
testimony of God. Running 10 years my relationship grew stronger each day as I
know God more by being intimate on him every day. It is His glory that is
working on me right now.
Handling Relationships
I experienced a lot of heartaches during my adolescent
years. Especially on how I deal with woman, during my elementary years and high
school years. I am serious all the time, ultra-focused on a particular love
interest. Always expressing words to impress the woman I fell in love with I
shower them with words and complements. I realized what was to work on is to be
real and have some life skills to handle a love relationship. Most of my
relationships fail to work because caring too much not to make mistakes due to
my past experiences with two women who brought me to the discipline’s office
due to the lack of appropriate social skills in a given situation. These areas
consist of privacy, personal space, tone, body language, abstract meanings of
words, paralanguage, processing things in the sub-conscious level or the things
that we cannot see, emotions, perspectives, ideas and opinions. Traumatize that
I cannot handle relationships, I sulked myself on this mindset for so long that
I fear of being rejected or in Tagalog mabasted. I hid my relationship to
people to avoid being ridiculed and even avoid re assuring the feelings of an
opposite sex towards me, because when I do this I get violent aggressions and
outburst. After this it will turn into depression and have low self-perception
due to remarks of people. Gladly, not all women who enter my life are like
this. It is because my focus right now is in Jesus the only hope that I can
have despite feelings of loneliness. So filling the gap of that void is my only
hope in enjoying my life alone. I realized relationship is all about living two
independent lives at the same time building for the future each one of us. Lately
I have that woman who is proud of what I am doing and understand the situation
as my friend who can be relied upon. I build that friendship through love,
compassion and understanding in a simple way as possible.
Social and Communication skills in Adolescent
In my puberty years I have the high need of sense of
approval due to my insecurities of being bullied and being a bully as well. I
tend to forgive slowly because some of it is attributed to the thought that I
need to have a perfect life which is not realistic. I felt neglect and
rejections by my classmates during the period. It was because of my fixed loved
interest, during those times I was frustrated and having friends during that
time was difficult being in the Special Science Class. Emotion regulation is
the reason that it was hard for me to move on. Seeking attachment for someone I
played and wanting that person as a teammate makes it worse. Before my life in
Christ it is a big deal. But today as I was immense by the love of God, I
manage this kind of feeling. And Without Him even my best friend will be an
obsession and compulsion. I had prayed several hours just to block of any of
those feelings and giving out my fears of losing persons who meant a lot in my
life. Lately that I realize this because being of an almost same experience
recently. This time I learned how to detach in a situation and a person is not
an object of your happiness. This made me function independently in my life
because it is needed for a person in this world to survive. Even your loved
ones are gone the thing remain is you. This pushed my family to support every
need that I have so I can manage my frustrations and setbacks. I really hate
frustration and setback because I want things to be perfect. That sometimes
create a sense of self that I am a king or superior to others. Seeking the need
for superiority is the issue sometimes in myself even on this day. Humility is
the best defense for this attack, because it tells you how you began your
journey as a person with Autism. Some may look at me as Temple Grandin but I
look myself as who I am. Being yourself is the key in knowing the real you. I
would address this to the parents out there not to compare your child to others
and be indifferent to others.
Life in College days socio-communication skills challenges I
faced
My issue back the in my college days is the school that once
not accepted my condition fueled hatred and anger to the Ateneo community. This
happened when my mom decided to transfer me to a bigger school to accommodate
me. At that time, when I see people from Ateneo I see them as “not friendly to
the autism community.” So then I got fantasies that I want to instill fear upon
them just to get their respect. Making myself a king to them. I thought of all
of them bowing and worshipping me. This came true when they call me “Idol”. But
as I entered and graduated college it proved false. I was even respected by
them because of my condition and can display my talents to them.
I really hate to get into trouble but angry to people who
did something wrong like drugs, party or sex. This led me to stick on my faith
in God to resists these temptations. However, my social skills suffer because
of the wrong people around me. You cannot hang out with them without going to lavish
parties, bars and sex with other women. It put a scar of inferiority complex
because I am autistic, I cannot do these things. I cannot process myself is I
am being corrected by my professors because I cannot argue with them. I kept
comparing myself to classmates. This led me to question my identity. But
knowing God more is key to Identifying yourself. So being In Christ is my
identity. It is who we are and what we are. We should thank the Lord for the
gift of miracles in life.
Sensory Issues
Before I wanted to be
like the leaders of the world out there like Winston Churchill, Abraham
Lincoln, Rodrigo Duterte, the kings and queens of England and other nations. I
read histories online and in encyclopedias I am sorry to say this because I
have fascinations in political topics, leadership styles, power, position. I am
not promoting someone here but, I am more inclined to the program of then Mayor
Rodrigo Duterte the Gikan sa Masa para sa Masa which talks about his peace and
order and other programs in Davao City that catapulted for him to be the
current president of the Republic of the Philippines. This became an
inspiration on how a life should be for a person with autism a peaceful and
secure life, we want things I order, organized and free from hussle. Sensory
issues arise when there is conflict it is difficult for me to cope with that
because it triggers aggressions and meltdowns.
Okay this is the difficult part of the journey when someone
has an heated argument. But in the current situation like the National Youth
Parliament I had attended, I experienced a taste of it. Well, we should just
relax take a deep breath and look every situation as a valuable experience.
I witnessed how you deal with ys during the parliament. I was amazed on how you driven yourself to a journey which inspires other people. I was so inspired watching you and to ms. Monique who is legally blind under my committee, peace-building,and now reading your blogs I was like "woooowwwww" How can he like this. I truly believe in God's grace. Keep inspiring others.
TumugonBurahinYour fellow youth parliamentarian
-Joey Tanguan-
Region 10
Peace-building and Security.